Learning Differently in Favor and Grace

Down Syndrome Awareness Month and We're Back

2011-10-26T10:02:00.000-04:00

It has been a long time since I've posted on this blog. I went to log in and had forgotten my username and password. So I had to reset everything, now we are good to go.

Hannah is doing very well. She is 5 years old and we are preparing for homeschooling. Yes, homeschooling! We officially start next year, but we've been doing things all along.

My goal is to post on this blog at least once a week. I will mainly focus on education and how we are homeschooling Hannah. In the meantime, check out this video, I created for Down Syndrome Awareness Month.

Talk with you soon!

Give Thanks In Everything

2010-01-28T09:53:00.000-05:00

image credit: Andy Welsh

Last weekend Hannah started saying a new word. We all know that most children love saying NO, which Hannah can say oh, too well, but now she is fascinated with YES.

My husband was driving and all of a sudden we heard this little voice from behind, yell, YES. We both looked at each other with excitement in our eyes. I felt so happy within, I could burst. Hannah said, YES and we would repeat after her. She kept saying YES and the more she said it the more my heart got full.

Sidenote: Why do I get so happy about my daughter saying words? Well, children with Trisomy 21 (Down Syndrome) usually have a speech delay and whenever Hannah says a new word I get full of joy. Learning to speak is no easy task for any child, but it is even harder for children with Trisomy 21.

My heart is full of joy and thankfulness. It is these little moments that allow me to see that God is in control. We don't control anything. No matter how hard we try to push our children to do things when we want them to, disability or no disability, things are not in our hands and we are not in control. God is in control of everything and I am thankful for that.

Thought for today.

Give thanks in everything

No matter what happens, always be thankful, for this is God's will for you who belong to Christ Jesus. I Thessalonians 5:18 NLT

Blessings,

Evelyn

Listening Closely

2010-01-21T08:11:00.000-05:00

Hello Everyone!

Yesterday, Hannah and I went to our favorite farmer's market, while there this nice man made my day. He looked at Hannah and said to me, "Can I just have her until she finishes college." I answered with a very quick no. God gave me Hannah for a reason and sometimes I don't quite understand why, but whatever the reason, I am thankful that she came to this world through me.
**Proud Mommy wanted to share this.**

Now back to the topic at hand. I have noticed that I have not been a good listener when it comes to listening to Hannah talking.

I have a friend who told me that you really need to listen closely to what Hannah is saying because she is talking. My friend also went on to tell me that she can understand some of what Hannah is saying. Now, I'm the mom and sometimes I don't understand what Hannah is saying. The reason for this is because I don't listen closely like I should.

Well, I've been listening closely lately and I am so surprised by what I am hearing. I didn't know that Hannah could say paper until, she had my pen and said paper. Hannah was letting me know that she needed paper so that she could doodle. I didn't even know she could say crayons, until she had her coloring book and said, "I want crayons."

Thanks, Ms. B for your insight.

Now faith is the substance things hoped for, the evidence of things not seen. Hebrews 11:1

Blessings,

Evelyn

Acceptance

2010-01-14T13:40:00.000-05:00

Here is an excerpt from NATHHAN/CHASK News Fall/Winter 2009-2010 that I think you will enjoy.

NATHHAN - Nationally Challenged Homeschoolers
CHASK - Christian Homes and Special Kids

Whether it is a grandparent who just can't accept that Susie wouldn't have a reading problem if she just weren't so lazy, or people in the grocery store who have gotten my little "crash course" in autisim, the idea is the same - when we stop feeling guilty or responsible for our children's difficulties, we can deal openly and confidently with other people. And I think our positive, accepting attitudes carry over to other people and, most importantly, to our children.

Second, we need to focus on our children's strength and abilities. It is easy to become so consumed with our children's difficulties that we can forget about the things they can do. Seing more than just our children's weaknesses can help us be realistic in a positive way. Again, though we have to b careful not to take the "nor" as our only measure. Some strengths are relative to the child, but still may not reach "normal." That is ok. If it is a relative strength, we need to recognize it and build it just the same. And remembering to build on strenghts can make our goals and our teaching more more realistic.

The above article is written by Sharon Hensley

We should always focus on what our children can do and not so much of what they cannot do. It makes acceptance and life so much easier. Accept what is and take it one day at a time.

Blessings,

Evelyn

Goals for 2010

2010-01-05T12:15:00.000-05:00

Hello Everyone!

My goal for this blog in 2010 is to:

Post regularly and consistently.
Inspire you to love unconditionally.
Connect with others.

Have a Happy New Year!

Blessings,

Evelyn

Our Little Leader

2009-11-13T11:26:00.000-05:00

Hannah is really growing and getting taller. As I stand back and watch her, I see the natural born leader in her. I've always known that she was a leader even before she was born. Many people have told me that they see that she is a little leader and I have never said a word. This is only confirms what I believe.

Hannah loves to watch her A to Z Sesame Street DVD and the Love and Learning DVD. Well, Miss Thang has figured out how to turn on the DVD player and to hit play. All I could do was look in amazment at her do this. Of course, Mommy is standing back with a smile inside her heart.

Well, Hannah turned on the dvd again. This time Dad got to see his little girl in action. Dad was in the bedroom, but he knew he had turned off the dvd and when he heard the Sesame Street characters singing again, he got up, stood and watched our little natural born leader. All Dad could say was that "This child never ceases to amaze me."

This may be a little thing to some, but this is monumental and so meaningful to us, because this shows us that Hannah is paying attention and is doing her thing. We've always just let her do her thing and not rush her, well, not always. It took me a while to get to that point and to realize that Hannah is going to do what she does in her own time. This realization has taught me to be patient and to wait on God's timing.

Have you ever had a time when you wanted God to move right then, but he said, "Not now." Most of the time, God says, "Not now" to teach us to have faith and patience and to wait on Him.

"What is faith? It is the confident assurance that what we hope for is going to happen. It is the evidence of things we cannot see." - Hebrews 11:1 NLT

Blessings,

Evelyn Parham
Hannah's Mom

I Love Living Life, I Am Happy

2009-10-19T10:37:00.001-04:00

Not Knowing What to Expect

2009-10-09T12:08:00.000-04:00

Nobody knows what to expect when they find out they are having a baby. But when we are told that our child will have a few challenges in life, we are sometimes not given much hope.

Most first time moms can easily get overwhelmed with having a new baby, but when a medical diagnosis of any kind is added to the mix, it can be quite stressful. I'm speaking from experience. It wasn't until I started receiving services for my daughter that I began questioning a few things.

Some of my questions from within

Why must my daughter receive these services at an early age, when she is progressing quite well?
What is it about my daughter that professionals think needs repairing? I certainly can't change the number of chromosomes, so why change her to fit society?
Why do I feel let down and a failure after the physical therapist leaves? My child was always in tears when the therapist did her thing and I felt helpless. People have a way of making you feel bad with their words and actions.
How do you know what my child will be able to do? Do you have a crystal ball and can see well into the future?

I shared a few of my questions, because when we were given a medical diagnosis of Trisomy 21 (Down Syndrome) for our daughter, we were told not to expect much from our child. I was amazed at how many times I heard some professionals say, "I'm sorry." I couldn't sit by and accept other people's prognosis for my child, regardless of what it looked like

When my husband and I were given our daughter's diagnosis, the first thing I remember the doctor saying was, "Don't expect a rocket scientist." How many parents actually expect their child to become a rocket scientist?

Writing off a child because he/she has a disability is totally wrong. Who really knows what a child with a disability can become? With a strong support system, the possibilities are endless.

No eye has seen, no ear has heard, and no mind has imagined what God has prepared for those who love him. No one can know what anyone else is really thinking except the person alone, and no one can know God's thoughts except God's own Spirit. I Corinthians 2:9, 11 NLT

A Gift Is A Gift

2009-10-02T12:27:00.000-04:00

2007

About a 1 1/2 years ago, I told a friend about Hannah and all he said was, "It's okay." My friend went on to tell me to do something.

My friend, Mike and wife Pat are such beautiful people and have always been there for me even before I was married and had Hannah. Well, Mike said, "Little E, I want to do something." I was like what? Mike went on to tell me to open my hands. At the time, I thought it was the silliest thing.

Mike said, "Open your hands and repeat after me. Thank you Lord for your gift and I receive your gift." Then he went on to say, "that everything will be alright and that it is okay." I've never had anyone be so sincere and say such heart felt words to me about my daughter. I could tell Mike believed with all his heart that it is okay and that things will be alright, no matter what. In the back of my mind, I was like how could it be alright. I did not understand that at the time.

At the time, I was hurting, but I did what Mike told me to do. Today, I now understand what he was doing and why he did what he did.

All children are gifts from God, even my little Hannah. She is tailor made for our family and I thank God for her.

Thank you, Mike for following the leading of the Holy Spirit on that day. You and Pat are truly a blessing!

A person's words can be life-giving water; words of true wisdom are as refreshing as a bubbling brook. Proverbs 18:4 NLT

Have a wonderful weekend!

Nothing is Impossible

2009-09-25T20:42:00.000-04:00

This video is truly inspirational.

A Great Little Helper

2009-09-23T18:13:00.000-04:00

God has blessed me with a great little helper. She loves helping her mommy do things and it makes mommy's heart swell with great pride and joy.

While putting the laundry into the dryer, little Miss Hannah came over and assisted me. She enjoyed what she was doing and when all the clothes were placed in the dryer, she clapped her little hands and yelled "hooray."

It is the little things that speaks volumes to our spirit. These little things often are what make our world happier and brighter, causing our hearts to smile. We may not have been dealt the best hand, but nevertheless, we must work with what we have and let God do the rest.

I'll leave you with the passage of scripture.

And we know that God causes everything to work together for the good of those who love God and are called according to his purpose for them. Romans 8:28 NLT

What is Faith?

2009-09-21T08:49:00.000-04:00

What is faith? It is the confident assurance that what we hope for is going to happen. It is the evidence of things we cannot yet see. Hebrews 11:1-2 NLT

Even though we can't see what will become, we know that it will be.

Blessings,

Evelyn

God Chooses a Mom for a Disabled Child

2009-09-19T23:46:00.000-04:00

by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen ? Somehow, I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.

"Armstrong, Beth; son; patron saint, Matthew."

"Forrester, Marjorie; daughter; patron saint, Cecelia."

"Rudledge, Carrie; twins; patron saint... give her Gerard. He's used to profanity."

Finally, he passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one, God ? She's so happy."

"Exactly," smiles God.

"Could I give a handicapped child a mother who does not know laughter ? That would be cruel."

"But has she patience ?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independance. She'll have to teach the child to live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you."

God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."

The angel gasps, "Selfishness ? Is that a virtue ?"

God nods. "If she can't seperate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it ! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.

"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."

"And what about her patron saint ?" asks the angel, his pen poised in midair.

God smiles. " A mirror will suffice."

Source: The Wonderful World of Down Syndrome

Thomas's Struggle

2009-09-16T15:36:00.000-04:00

A few days ago I viewed LaShawn Barber's Corner-blog and was in tears after viewing the Thomas's story.

Long story short the Thomas's knew their baby would be born with Trisomy 13 (a genetic disorder that results in abnormalities like a cleft lip or palate, close-set eyes, extra fingers and toes, etc.), and that he would not live long after birth, but they chose to give their baby boy life.

Life is so precious!

Here is the link to the post Thomas's Struggle.

**Make sure you view the video.**

Have a blessed day!

I Undeleted this Blog

2009-09-12T18:29:00.000-04:00

**Changed site address to http://favorandgrace2.blogspot.com.** 9/21/2009

Hello Everyone!

A few weeks ago, I deleted this blog. Why? Well, I asked myself a question. Would I be blogging about Hannah if she did not have Trisomy 21? My answer was no and as a result I decided to delete the blog. But I had a change of heart and decided to undelete Favored Grace. While I was away, I continued reading the blogs that I subscribe to in my reader and I really enjoyed the posts.

I will take a different approach with this blog. Stay tuned!

Have a good day! :)

Wordless Wednesday

2009-08-26T12:30:00.000-04:00

7 Funny Things

2009-08-25T09:50:00.000-04:00

Here are some funny things that Hannah does and it tickles our funny bone.

Tries to sing along with her songs, while we are riding in the car. Nobody can tell me my baby's not getting her song on.
Puts on a show when her foster grandparents comes by. She dances and entertains them, because she is so happy to see them.
Heads straight for the keyboard and drums after church. One Sunday she had the drum sticks and was holding them the right way getting her beat on.
Gets in Dad's lap while sitting in church and puts her little finger on Dad's lips and says "mmm--outh."
Gets her worship time on when she sees others in church raising their hands/clapping their hands/singing. She will raise her little hands and bounce up and down as if she's doing a little dance.
Flushes the toilet after using it, but the funny thing is she wants to keep flushing.
When she knows her picture is being taken she makes a funny face just like in the photo above.

What are some funny things that your child does? Please feel free to share.

Everyone have a wonderful day and remember to find the humor in things. You will find yourself laughing more than ever. :D

Inspirational Monday - Gifts

2009-08-24T11:56:00.000-04:00

Life is a generous giver,

but we, judging its gifts

by their covering cast them away as ugly or heavy or hard.

Remove the covering

and you will find beneath it a living splendor,

woven of love, by wisdom, with power - Fra Giovanni

Have a wonderful day!

Yesterday I Cried, Today I Rejoice

2009-08-20T08:37:00.000-04:00

Yesterday, I stopped by Lori's Blog (Special Homeschool Connection) to see what helpful links I could visit through her blog. I am glad that I visited her blog, because I found some links to help me get ready to home school.

I am planning to home school my daughter and I am starting this year. Yeah, I know she's only 3 years old, but I feel the earlier we begin the better. Hannah is very interested in books, letters, numbers, colors, music and writing (scribbling) and I know she will benefit from us getting started early. When we see our children taking interest in learning (it doesn't matter if they have a disability or not), we should help them along the way.

I have found a pre-school core curriculum package through Timberdoodle, that I feel will help me cover the basics with Hannah. I'll be ordering it soon. I have also found a Christian Home school group in my area.

Now that I've told you about my homeschooling plans, I want to tell you what happened to me on yesterday. I am a very strong person, but on yesterday I got depressed and a little upset. I actually broke down and cried. Yeah, I had my moment. I find that releasing those tears, cleanses me and helps me to feel lighter in my spirit.

After I had my cry, I began to search out ways in which I can help Hannah move along. Every time, I feel I am losing my patience, God always shows me that I don't need to worry, because He has everything in His hands. Here is what happened on yesterday after I had my cry.

I was casually flipping through some books (letters, numbers, colors, shapes etc) with Hannah. She points to some pictures and tells me what those pictures are. I'm in total amazement, because these are new pictures. **God revealing that He is in control.**
Hannah points to the shapes and says, "circle, triangle, square." Her pronunciation is not very good, but good enough for me to understand what she was saying. **God revealing that He is in control.**
We get to the numbers and I'm only flipping through the book and letting her see what's in the book, she begins to say the numbers and name some pictures. Again, I am amazed and my heart is over joyed. **God revealing that He is in control.**
While reading to her before her bedtime, she says some of the words that am I reading to her. But what really got me was when she helped me finish a sentence. Again, I was amazed. **God revealing that He is in control.**

I said all of that to say, that just when we feel like we are about to lose our faith and patience, God will show up and reveal Himself to us through our children, letting us know that He is always there. God will reveal that He is in total control and that He already has His timing and His plan. God showed me on yesterday, that I don't need to worry, because He has it all taken care of because He is in Control.

Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will direct your paths. - Proverbs 3: 5-6

What is faith? It is the confident assurance that what we hope for is going to happen. It is the evidence of things we cannot yet see. - Hebrew 11:1 NLT

Blessings,

Wordless Wednesday

2009-08-19T17:54:00.000-04:00

Unsolicited Advice

2009-08-16T08:00:00.000-04:00

It is one thing if I ask for your advice, but another when I haven't asked for your advice at all.

I usually don't tell how I truly feel about what I experience with my daughter. I usually discuss my experiences with my husband and close friends, but I felt the need to talk about this. Parents of children with disabilities have to go through a lot and we often receive unsolicited advice. This really bothered me and I began to wonder will this always be the norm. I do believe that it will happen many more times, but I will respond differently.

I've had this happen many times when Hannah was a little baby, but I brushed it off and now I am experiencing it again. Some people seem to think they know what is best for your child. I know people mean well, but sometimes people should just keep quiet.

I am looking for a speech pathologist to do an evaluation on Hannah. I wanted to do this when she as younger, but when I called to inquire about this service with a private speech therapist, she referred me to someone else. She also asked me if I could go through the state's Babies Can't Wait program to get the assistance I need.

Well, long story short everyone wants to tell me where to go and and what to do, when it comes to my daughter. The advice is fine at times, but I am an informed parent, who has a plan.

When Hannah had her check-up, the nurse and I discussed having Hannah's speech evaluated. One of the nurses suggested I go through the public school system to have Hannah evaluated. Well, that is a great way to go, but that is not the route I had in mind. The Nurse practitioner who examined Hannah, explained to the other nurse that some parents choose a private route and it is fine to do so. The nurse practitioner asked me if Hannah is attending the school that is available for her to attend at this time and I said no. She asked me what my plans were for Hannah's education and I told her I plan to home school. The nurse practitioner said "at least you have a plan and that's the most important thing."

Let me get back to the speech evaluation. I told the nurse pratcitioner that I did not want to go through the public school system at this time and that I would like to have Hannah evaluated at a facility in my county. She said fine, we will send an order.

This week I called the facility to schedule a time for a speech evaluation. I use to work at the facility and I felt it would be a great place to take Hannah, but now I'm having second thoughts.

I spoke to a very nice lady and she answered all of my questions. During our conversation the nice lady began to tell me to check with the state program and to also check with the public school system. I felt as if I had just received a slap in the face. I told her we would be in touch.

This is what I mean by unsolicited advice. I am an informed parent and have been from day one. I am aware of the assistance and services that are available. This really discouraged me, but I am wiser and stronger because of this experience.

Whenever I am in a situation and someone offers unsolicited advice, I will tell them, that I already have a plan. I know people mean well, but I find that people do this quite often and I am tired of it.

Whatever you have planned for your child, do it and don't let anyone persuade to change.

Take care!

Blood Test Results

2009-08-15T12:05:00.000-04:00

Update:

Hannah's blood test was fine. She also had a very good ENT experience. I couldn't believe how Hannah acted. She usually cries and wiggles when anything comes in contact with her ears, but she sat there like a big girl and didn't cry. My little Hannah is growing up.

I was very pleased with the ENT experience. I thought we would have to go back to the OR (operating room), but the doctor told me that Hannah's pressure test was good and that the tubes are out of one of her ears. We'll see him again in 6 months. I am so thankful that all is well with her ears.

I would like to thank everyone who sent up prayers for Hannah.

Blessings,

Lemons to Lemonade Award

2009-08-15T11:30:00.000-04:00

I received these rewards a few months ago, but I am now responding. One reason for the late delay is that this is a fairly new blog and I was getting to know the other bloggers by reading, visiting and participating in the community.

Ruby's Mom from Ruby's Life bestowed this wonderful award upon me and now I will do the same to others. Thank you Cheryl!

Lemons to Lemonade Blog Award

The rules for Lemons to Lemonade award:

Put the logo on your blog or in a post.
Nominate at least 10 blogs that show great attitude/gratitude.
Link to your nominee within your post.
Let the nominee know they are nominated by commenting on their blog.
Share the love and link to the person from whom you received your award.

Thanks to Ruby's Mom for the nomination.

The Lemons to Lemonade Award Nominees are:

Blessings to you all!! :D

Yearly Check-Up

2009-08-11T09:33:00.000-04:00

Hannah had her annual check-up last week. Every year Hannah has her blood tested to see if her thyroid and blood cells are in normal range. All blood work was in normal range and I cannot thank God enough. Hannah has future appointments with her ENT (today), cardiologist, opthamologist and the dentist. We will keep you posted.

Writing on the Chalk Board

Playing

Playing in the exam room

Happy Birthday, Hannah!

2009-07-28T09:54:00.000-04:00

Hannah is 3 years old on today and I thank God for her being here and for her doing as well as she is. This will be a lengthy post, because I have so much to be thankful for.

Hannah was born on July 28th, at 8:29 AM by C-section. She weighed in at 5 lbs and 15 ounces with a length of 18 inches. The first thing the doctor said after getting Hannah out was "She's a pretty little thing." At the time, I was waiting to hear Hannah's cry, I wasn't concerned about what she looked like. When she did let out the little cry, everything was just fine. They brought little Hannah over to me and all I could say was "She is so pretty." The nurses were crazy about Hannah, they even tied a little pink bow in her hair. Hannah's birth was such an exciting and happy time in our lives.

The first 2 years of Hannah's life were trying times for me. I didn't know if I could bear all of this. Why? Because I was very depressed, because my first child was born with Trisomy 21. I would question God, wonder what I did wrong, and even wonder what my ancestors did in the bloodline for me to have a child with Trisomy 21. I finally stopped questioning God and looking for reasons why Hannah was born with Trisomy 21. I've accepted that she's here for a reason and I will do all I can to help her reach her fullest potential. It is not about me, it is about her!

Today, my little Hannah is 3 years old and I will share with you some of Hannah's milestones. First let me start by saying that, Hannah does not receive any traditional therapies at this time. We stopped physical therapy when she was 7 months old (after I came off my job) and I began working with her myself. But soon after that I realized that no amount of therapy would help her do things any faster. When Hannah gets older and if we see that she needs assistance, then we will get her the help that she needs, but for now..I let her find her own way, allowing her to do things in her own time. Believe me you, it is not easy, but with God and a little time, change does come. Patience is truly a virtue!

Milestones (my memory is not good, but I'll do my best):

Lifts Her Head...1 1/2 - 2 months

Rolls Over...3-4 months

Sitting Up by herself...7-8 months (I remember this, because when I became a stay-at-home mom, she wasn't sitting up alone, but within a week of my being home with her, and working with her, she was sitting up alone).

Crawling...8 1/2 - 9 months

Pulling up & Cruising & Trying to walk...10-13 months (Hannah cruised for quite sometime, because I think she was fearful of letting go)

Walking by herself without falling..15 months (I will never forget this, we have that day recorded on video).

I can go on and on, but I will stop here. Right now, Hannah is saying words and can read some words. She also does a little sign language too. She talks more than she signs, so we stick to talking. The latest thing Hannah has been doing, is speaking to people. She's not only saying hi to people, but she is actually shaking hands and saying, "How you doing? Yeah, I noticed her doing it this past weekend while we were in Tennessee. This weekend I also noticed that she was looking at her fingers and counting. I caught her saying her numbers and using her fingers. She was sticking her pointer finger out and saying 1 and then she would put her middle finger next to her pointer finger and say 2. You know I was helping her do 3 with her fingers and explaining to her that she is now 3 years old.

This year is the year that Hannah can go to public school for a few days a week, but we have decided to teach her ourselves. I have already been teaching Hannah things since I can remember. Before Hannah was born, my husband and I decided that we would home school our children and Hannah is no exception. Granted it maybe a little challenging, but I'm up for the challenge. Homeschooling for Hannah begins after labor day and I look forward to it, because I am a teacher at heart.

I am thankful to God for all he has done in Hannah's life. She is truly a blessing to our family. I thank God that she is in the land of the living and is touching peoples lives near and far.

Happy Birthday, little Hannah!!! You are truly the sweetest little girl I know.

Quadriplegic Motivational Speaker - Bill Cawley

2009-06-29T08:27:00.000-04:00

Your attitude about any situation makes a difference.

Have a great day!

God Doesn't Make Mistakes

2009-06-13T10:34:00.000-04:00

We live in a society full of the latest technology. All kinds of tests can be done before the baby is born to detect birth defects/genetic abnormalities. Sometimes a mother is given a diagnosis about her unborn child, that she was not expecting and is pushed to make a quick decision.

Pregnancy is already stressful enough and one expects the mother to make the decision to proceed with the pregnancy or to terminate her pregnancy/abort her baby. In some cases the mother is encouraged to do the later (abort her precious baby).

If you are a mother who has found out that your baby will have some challenges in the world and you feel you cannot handle it, then please consider giving the baby a chance at life by placing the precious baby up for adoption. True enough, you will wonder how your child is doing from time to time, with his/her new family, but at least you know the child is alive and has a family, unlike the thousands of babies who get aborted everyday.

There are many people out here who would love to adopt your child. There are ministries that work to place children with Down Syndrome in homes with people who want them. One of the ministries that I am aware of is Reece's Rainbow Down Syndrome Adoption Ministry.

Remember "God Doesn't Make Mistakes." (no explanation needed)

Blessings,

Evelyn

Flash Back Friday

2009-06-12T07:46:00.000-04:00

I remember Hannah loving that little bee and the little blue bear on the right. She would hit them because she enjoyed hearing the little rattle sound. She would also hold them up to her face and mumble sounds as if she were talking to them. My husband and I would get so tickled when she would play with the little bee and the little blue bear. It was a site to behold. I think Hannah is 6 1/2 months in this photo.

It's Number Time

2009-06-09T12:45:00.000-04:00

This is a video of Hannah saying some of her numbers. This video was recorded in April of 2009. Hannah is 33 months in this video. I wanted to share this to encourage and inspire other parents.

Never underestimate or think less of your child because of his/her diagnosis. Sure, at times I get depressed, but lately depression has been a thing of the past. I focus on all the things that Hannah is and I forget all the things that she is not. Guess what? All the things that Hannah is, is all that she is.

Be inspired and know that you are NEVER alone.

God bless you and keep you FOREVER!

Everyday is Mother's Day

2009-06-04T09:01:00.000-04:00

I found this video on YouTube and wanted to share it with you. It is so amazing to be a mother no matter what the circumstances.

Have a wonderful day beautiful Mommies. :)

Throwing Away Trash

2009-06-01T09:14:00.000-04:00

Hannah has been doing great. As her mother, I find myself worrying more than I should be. Why? I don't know, but I do worry. I guess that's a mommy thing. I have to always remember that God is in control.

Hannah does little things long after we've shown her what to do. This little girl, pays attention to everything and takes it all in, but she acts like she's not paying any attention at all. I think I was like that when I was growing up too.

Hannah was drinking her juicy juice and walked over to the trash can to put the empty box in the trash can. No one told her what to do, she simply did it on her own. After she put the empty box in trash can, she clapped her hands. Dad and I gave her a BIG hug and told her she did a wonderful job. Now she wants to put everything she gets her little hands on on the trash. :)

Side Note #1:

Our church had a Health Fair this past weekend and it was great. One of the sisters (Angela) had the children in a little group doing arts and crafts. Sister Angela is really good with children.

I noticed little Hannah was right there with the other kids sitting in the group with no problems. The reason I say this is because Hannah is an only child and stays at home with mommy. She does great around other children. I really don't believe children have to constantly be around other children to be sociable and interactive with others.

A child's first and best teacher is his/her parents.

Side Note #2:

Hannah walked down the steps of the porch all by herself. I was determined not to assist her down, because I know she can walk down the steps if she so chooses. Well, little Hannah wanted down and she walked down so she could play in the grass. She took her time and was so very careful to not fall. I find that little girls don't like to fall down, so she takes her time.

I was full of happiness to see her walk down the steps all by herself. She's becoming a big girl! Daddy actually saw her do it and I kept asking Dad, "Did you see that?" :)

It is the little things that mean a lot and they bring so much joy and happiness. God is truly good and He is worthy to be praised!

Happy Monday, everyone! :)

A Heart Smiling Moment

2009-05-11T09:44:00.000-04:00

I missed this yesterday, because I was in the garden. My husband was talking to his mother on the cordless telephone and Hannah picked up the other telephone.

Hannah climbed in the chair, picked up the phone and said "hello" and commence to jabbering away. I guess Hannah and her grandma had a nice conversation. (smile) I thought that was so sweet and I wanted to share the moment with you guys.

Have a blessed week!

Let Us Pray

2009-05-08T12:19:00.000-04:00

Ladybee2009 who is my friend on Twitter and via Blogging shared this video link on Twitter and I had to share it with you. I love the song and the words are so powerful and true. Enjoy!

A Mother's Heart

2009-05-08T09:33:00.000-04:00

A few days ago, I poured out my heart to a dear friend of mine. I shared how I felt about Mother's Day with her and why I felt that way and she really helped me realize some things.

As Mother's Day approaches, I really have been feeling less of a Mother..as if I'm not worthy of any appreciation. As a matter of fact, I really don't want any appreciation. I know that I am a Mother and am glad that I am, but at times, I feel down because I blame myself for my daughter having Trisomy 21 (Down Syndrome).

My friend said some things that I know I must do. For one I need to pray and cast those thoughts and cares away. I told her it is so hard for me. My friend also had no idea that I felt the way I do. I'm very good at hiding my true feelings and rolling with the punches, but now I know I must let it out and let it go.

I was reading in Proverbs this morning and this scripture jumped out at me. I want to share it with you.

Proverbs 20:5 Though good advice lies deep within a person's heart, the wise will draw it out. (New Living Translation)

After reading Proverbs 20:5 this morning, I realized that my friend had drawn out the advice I already had within me. She simply helped be bring it to the surface. Thank you dear sister and I thank God for you.

Now that I feel better, let me tell you what my friend said to me.

It is not your fault...stop blaming yourself
You are doing a wonderful job with her
If God did not want Hannah here, she would not be here
She has talents and gifts (she loves music)...help develop that
You have to make peace with yourself and with God and let Him take control
You have to project positive thoughts and to treat her no differently, and pray over her, if you are thinking negative and blaming yourself she will feel how you feel. Children are very intuitive. More than we will ever know. :)

I was like...I know, I know, but hearing it from my friend really hit home for me. Many things came to the surface and I realized that Hannah is who she is and will become. I'm just the overseer; loving, nurturing protecting and helping her reach her fullest potential through God.

Hannah and I were walking outside in the yard and she was going where she wanted to go and didn't have a care in the world. A beautiful thought entered my mind. Hannah was walking with a purpose (to get to where she wants go) and this is what we all have in common.

An old photo, but I wanted to share it.

"Hannah is a human being, an individual and she will get to where she wants to be because of her strong will and determination." After that thought crossed my mind...I exhaled knowing that it will ALL will be FINE and WELL."

Blessings and Happy Mother's Day Everyone!

Evelyn

Patience of Job

2009-04-27T07:51:00.000-04:00

I am learning to trust God and to have faith in Him alone. Sometimes we want things to happen so fast with or children, but God already has His plan and time frame for everything.

Having Hannah in my life has given me a different outlook on life. I understand now what people mean when they say, "One has the patience of Job." Things may not happen when we want them to, we have to wait on God's timing. During the waiting period we develop the patience like Job had.

Last night, while putting Hannah to bed, I told her to say bye-bye to Daddy. Well, guess what?? She waved her little hand and said, "bye-bye Daddy." My husband and I paused (my mouth fell open) and looked at each other in shock, because she has never said that before. We were overjoyed and I actually had water in my eyes from smiling so hard. Hannah made our night.

Things may not happen when we want them to, but I'm a witness that things happen right on time. Just when I feel like giving up and throwing in the towel, God shows Himself. He has never failed me. God will always reveal that He is in control.

Have a great Monday!

Blessings,

Hannah's Mom (Evelyn)

Terrible Twos

2009-04-21T10:08:00.000-04:00

A quick post to let you know that Hannah has been testing my patience. Yesterday she climbed upon her dresser and knocked over the lamp. I had to breathe and realize that she is doing her exploring. There is a CD player that she was trying reach that is located on the dresser. I didn't realize it, but she knows how to pop the CD out. She watches everything we do, but acts like she's not paying attention.

There is another thing I discovered that she knows how to do. Hannah loves music and loves to play my keyboard. A few days she kept turning it off, but would get mad if I didn't turn it back on. I didn't realize what she was doing until yesterday. Yep, paying attention to the button I was using to turn the keyboard back on. Now, she can turn it on and off whenever she likes. She was changing the sound of the keyboard and adding beats and everything. It was quite a show to watch her do her thing. A mistro in the making.

Hannah never ceases to amaze me. There is truly never a dull moment with Little Miss Hannah.

Peace and blessings,

Evelyn

Spread the Word..to End the Word

2009-04-02T10:55:00.000-04:00

I often hear people using the word retarded (R-word) to describe a person who has an intellectual disability and oftentimes people use it jokingly with others who do not have a disability. It is a word that no one should ever let cross their lips. Like the N-word, the R-word is unacceptable and should be banned from our vocabulary.

People who have disabilities deserve respect. Let's ban together to end the use of the R-word.

Dare to Take Risks

2009-04-01T10:41:00.000-04:00

With courage you will dare to take risks, have the strength to be compassionate, and the wisdom to be humble. Courage is the foundation of integrity. - Keshavan Nair

The Chatterbox

2009-03-25T08:35:00.000-04:00

Hannah and I were out yesterday running errands. Sometimes, Hannah will not even speak to people, but yesterday she was in a speaking mood. She was singing her ABC's and having a good time.

It all started when we were at the Farmer's Market. An elderly gentleman spoke to Hannah and she said "Hi" and extended her hand for a handshake. The elderly gentleman man's heart melted. Sometimes children say and do the most loving things especially when we need a lift in our spirit.

The next stop was to purchase some organic green leafy vegetables. Again Hannah was speaking to people and chattering away. I'm the proud mom, saying go ahead baby and do your thing.

Hannah was still being a chatterbox on our final stop. As we were leaving the store, Hannah told the lady bagging our groceries, "bye-bye." In my heart I was praising and thanking God for all that He has done and continues to do.

I can do all things through Christ Jesus who strengtheneth me. Philippians 4:13

Blessings to all!

Disability is Natural

2009-03-20T15:20:00.000-04:00

"One out of five Americans is a person with a disability.
One of the five apples in the bowl is green.
A green apple is more like red apples than different.
A person with a disability is more like people without disabilities than different.

There have always been people with disabilities in the world and there always will be.
Disability, along with gender, ethnicity, age, and other traits, is simply one of the many natural characteristics of being human. This principle is embodied in the Developmental Disabilities Act and other Federal laws.

The warm rays of sun shine equally on the five apples in the bowl.

It's time for the warmth of inclusion to shine equally on apple with and without disabilities in our society." Kathie Snow ~ Disability is Natural

One of my favorite common sense books about disability is, Disability is Natural, written by Kathie Snow. Kathie takes a revolutionary common sense approach for raising children with disabilities. The common sense approach is something that is often times missing in our society.

Reading Kathie's book and the many articles on the website (Disability is Natural) helped me to realize that I could step out on faith and truly do what I felt was best for my daughter.

Thank you, Kathie Snow for such an eye opening book.

"Your child is a unique person with many strengths, abilities, talents, gifts, hopes, and dreams, and your child is perfect, just the way he is." Kathie Snow

Watch your Tongue

2009-03-10T10:18:00.000-04:00

This is a quick post about the cashier lady in the grocery store. There are some people who say things that they simply should not say. They fail to think before they speak. Before I say anything to anyone, I always ask myself, "is it necessary and how will my statement affect the other person." I know I will receive many more questions and comments about my daughter and I will be wise with my answers and responses.

Okay back to the cashier lady. While the cashier lady was checking me out, she asked, "How old is your daughter?" I told her 2 1/2 years old. Then she proceeded to ask me if I was getting speech therapy for my daughter. When she asked me this, I have to admit, my heart dropped because she was butting her two cents in where it did not belong and I was wondering what would make her ask such a question. My daughter very rarely says anything to anyone when we go into stores. Sometimes when she wants to, she will say "hi" and "bye-bye" and even give a hug sign to people, but that is about it. I see a lot children in stores who do the same thing, but that does not mean that they have speech problems and cannot talk.

I responded to the cashier lady by being nice and respectful. Later on that day, I thought about the cashier lady questioning me and how I will respond to others like her in the future. The next time anyone asks me questions, that are intrusive and just plain stupid, I will ask them, why do they want to know.

People who do not know me have said things to me about my daughter, that I would never say to others about their children. It is one thing to ask questions to be enlightened, but its another when the comments are meant to make one feel bad. People should always try to think before they speak.

Oh, be careful little tongue what you say.

Remember to Laugh

2009-02-20T23:27:00.000-05:00

I was doing my Taebo workout this morning and I had Hannah out of her play pin. Can you believe that Hannah was trying to get her exercise on too. She was swinging her little arms and clapping her hands just like I was. When Billy Blanks said time to do the round off kicks, little Hannah was lifting her legs too. I wished I would have recorded her trying to do Taebo. It was too cute!

Lately I have been noticing that whenever I give Hannah juice or something to eat, she will climb onto the sofa, as if she is getting ready to be served. I guess she thinks I am her server or something.

I have also noticed that when she wants a snack and can reach for it, she will get the snack and bring it to me so that I can open the bag or container and give her the snack. This little child never ceases to amaze me.

There is never a dull moment with little Hannah. Whenever I am feeling down, she will do something to make me laugh and to appreciate the simple things in life.

That day is lost on which one has not laughed. **French Proverb**

Busy Little Girl

2009-02-05T14:48:00.000-05:00

These days Hannah is getting into everything so much more than ever before. She loves to drag shoes, clothes, toys from the closet, anything she can find, into the middle of the living room floor. She is doing the typical things that any 2 year old would do. She's exploring her surroundings and I am paying for it by having to pick up after her 24-7. Sometimes Hannah drives me crazy, but I am thankful that she has so much energy and loves to get into things.

Hannah is always showing me something new and I am thankful for her, because I can truly see God working in her. I have faith that my daughter will be okay, but when I visibly see her doing things that would not be the norm for a child with Trisomy 21 (Down Syndrome), then I know God is in total control.

Hannah is trying to say her ABC's and recognizes the beginning letters of some words. She surprised me yesterday, when I was reading a book to her about bubbles. As I was saying the word bubbles, she said, "b,b,b." I was so happy! I see everyday that she actually knows more than I think she knows. She never ceases to amaze me!

Hannah was saying the word "apple" all the time. She has stopped saying apple as much and has a new word that loves to repeat "ice cream." I do not feed Hannah ice cream, but for some reason, she keeps saying the word whenever she sees it in a photo or sees it on television.

I know that God is in charge of all things. And we know that all things work together for good to them who love God, to them that are called according to his purpose. [Romans 8:28]

Trisomy 21, What is it?

2009-01-22T21:34:00.000-05:00

Most of you are familiar with biology and how babies are conceived. During conception, when the sperm meets the egg, the cells merge together to create life. The mother will contribute 23 chromosomes and the father 23 chromosomes, which gives a total of 46 chromosomes.

During cellular division, something does not divide properly, which results in a total of 47 chromosomes. Scientist really don't know how this occurs, but some think that during cellular division the chromosomal material from the egg sticks together and does not divide properly, resulting in extra genetic material. Extra genetic material will show up on the 21 pair of the chromosomes. Below is a karyotype of Trisomy 21. Notice the extra chromosome on the 21st pair.

A person with Trisomy 21 will have certain characteristics, which are due to the extra genetic material. The extra genetic material is what causes the individual to do some things a little slower than others.

Most people think that people with Trisomy 21/Down Syndrome will never be able to do anything, but that is not true. I believe that all people can learn and be productive members of society. People with Trisomy 21 are capable of doing anything that they set their minds to do. When people with Trisomy 21 have a good support system and are exposed to everything the next person is exposed to, then the sky is the limit.

A Calm Air

2009-01-16T01:33:00.000-05:00

Daddy's Little Princess

I remember it as if it were yesterday, when I took the home pregnancy test. I was shocked and happy at the same time. Shocked because it only took my husband and I two (2) months to conceive. My pregnancy was very good, I did not have morning sickness at all. It was so exciting to be pregnant and to feel life move inside of me.

I did not realize that a pregnant woman took so many tests while being pregnant. I'm sure this did not happen back in the day. I recall signing a form to test for birth defects, called a triple screen. I only signed the form because I knew I would be 35 years old at the time of my daughter's birth. I never thought much about it. When time came to take the test I guess around 20 or 25 weeks, I took the test and did not think much about it.

I remember receiving a call from the nurse about the test results and she assured me that I should not worry, because the triple screen results have a high rate of false positives. I was referred to a specialist who would do an amniocentesis. My husband and I saw the specialist not realizing that we would first have to talk to a genetic counselor. Even after speaking with the genetic counselor and discussing the possibility that I could be carrying a child with a genetic disorder, Trisomy 21 (Down Syndrome), I still was not bothered by it. I knew I had life inside of me and I did not care about my child having a genetic disorder. I would deal with that when the baby was born.

I never had an amniocentesis and I kept my baby. Hannah was born with a few health concerns, but nothing life threatening. She was the most beautiful baby that I had ever laid eyes on. She had and still does have such a calm air about her. That calm air she had would one day heal my aching heart.

Hannah was tested for Trisomy 21 while we were in the hospital and we did not receive the results until two (2) weeks later. A day that will forever be etched in my mind. As we travelled home, I tried to convince myself that everything would be alright. Need I say more.

Our Angel on Earth

2009-01-16T00:00:00.000-05:00